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Wyo. legislators join fight against cancer

By Michelle Dynes
mdynes@wyomingnews.com

CHEYENNE -- Half of all men and a third of all women will hear a doctor say: “You have cancer.”

This statement used to be a death sentence. But new medications and procedures offer hope to patients fighting the disease.

Wyoming’s lawmakers now have joined the battle. Last week they approved legislation to extend health insurance coverage to clinical trials.

Local resident Greta Morrow said her participation in such trials saved her life.

Cancer patients who do not respond to standard therapies often turn to clinical trials as a final option. But while Wyoming insurance companies previously covered the cost of routine cancer care, benefits did not include research studies.

This meant that patients paid the bill for blood tests, doctor visits and chemotherapy treatments associated with testing unproven medications. Pharmaceutical companies provide free medicines and pay for any additional tests.

Morrow said it can take six to eight years’ worth of clinical trials before a drug is approved for general use. But research studies offer patients a potentially life-saving treatment.

“It’s an access-to-care issue,” she said. “The knowledge about how to treat cancer is growing at a rapid rate.”

Morrow added that she didn’t hesitate when her doctor suggested a clinical trial.

She wasn’t responding to traditional treatments. After three clinical drug trials, Morrow’s cancer still wasn’t in remission.

But the new medications bought her extra time. She said the experimental drugs kept her cancer from growing and allowed researchers to finalize a new type of bone marrow transplant.

Since she was too sick to withstand a traditional transplant, Morrow agreed to join a fourth clinical trial.

This time it worked. The mini-bone marrow transplant that saved her life is now a standard treatment.

But Morrow was surprised to learn that her health-care benefits did not include clinical trials. She was told that she could take part in clinical trials, but she would have to pay the bill.

State Rep. Lori Millin, D-Cheyenne, said she also was surprised to learn about the coverage gap.

People who pay for health-care insurance assume they have the means to get well without going broke, she added.

The issue came before the Joint Interim Labor, Health and Social Services Committee, and legislators agreed to sponsor a bill to extend health care coverage.

Millin said members heard from a woman in her district going through her second bout of cancer. She testified while wearing a baseball cap because she lost her hair to cancer treatments.

Patient testimony put a face onto the problem, Millin said. And the successful stories of people like Morrow show that clinical trials do offer hope.

With the approval of the Legislature, Wyoming now joins 23 other states with similar laws.

Medicare began to include clinical trials in 2000.

Under Wyoming’s bill, coverage is limited to Phase II, III or IV clinical trials. It does not include Phase I trials, which establish toxicity levels and have the greatest risk for adverse reactions.

All clinical trials also must be approved by an agency such as the Food and Drug Administration, Veterans Affairs or the National Institutes of Health.

The legislation only applies to cancer clinical trials.

Nancy Higgins said cancer is a strange disease. Each person will experience different symptoms and react to different treatments.

Two years ago she was diagnosed with thyroid cancer, and while she has not joined a clinical trial, the participation of someone else helped advance today’s treatments, she said.

“The path was made for me already,” she said. “What if it wasn’t?”

Janet Anderson said she discovered a malignant tumor in her uterus two years ago.

But after beating cancer once, the non-smoker was diagnosed with small-cell lung cancer last year. Low-dose radiation put the disease into remission, but there is always the chance it could come back.

She added that while this type of cancer is incurable, that could change with additional research.

Anderson said she continues to complete quarterly scans and blood tests. Her annual bills are $4,000 instead of the $12,000 she would be forced to pay if this care was part of a clinical trial.

“When you are fighting cancer, the last thing you want to fight with is your insurance company,” she said. “I’m here today because of people who went through clinical trials in the past.

“I survived, and I owe that to people who paid out of pocket.”




Reader Comments

2 nut cases wrote on Mar 15, 2008 1:57 PM:

" To JD:
The WTE goofed it up not me. If I had, I would admit it, unlike the newspaper. But I can't explain how they did it, they just did. "

Ms. K. ebert wrote on Mar 10, 2008 4:34 PM:

" Frist of all I would take a moment in cry but no-COPD there are three types of cancer diagonses cp, pr, or and pc, I hate doing this lets read the blueprint-U.S. Citizens haven't been diagonse by this disorder it is cureable we didn't get funded 14.2 million-wow I hope ppl got medical coverage=twenty five percent is for the DAR=seventy five percent are for BHE...all we can do is hope the illness doesn't spread any worse...and we do get medical health coverage approved just commonsense to stay alive and well...(LCAM) is a national campaign dedicated to increase attention to lung cancer issues...okay Katie ebert here we go again confused issues on a cure for cancer when we donate $1.00 a month or so (every day) and no funding awareness we support these cancer issues and no cure!!! Not an issue I would like my doctor to tell me is if you have cancer and join the rest of the death population...I wished someone could tell me how much blood (fusions)that would be drawn out of my lifesupport system...Thanks "

TS wrote on Mar 10, 2008 3:26 AM:

" If you are given a death sentence, in this case cancer, and given the option to act as a guinea pig for a new type of treatment which may buy you some extra time on to live, I suppose it just might be worth it depending on the side effects of such treatments. After all it isn't the quantity of life that is as important as the quality of life. I hate to see people suffering but some people would rather suffer if it means spending a few extra days with the people that they love. I.e.,Watching the 5 year old blow out her candles on a birthday cake, holding a first born grand child, laughing at a funny joke told by an 8-year old or sharing a sunset with a loved one. Those moments in life are priceless and some would give anything in the world just to be there for it. My heart goes out to those whose time on earth has been given a shorter sentence. Savor every moment. "Carpe Diem" Seize the day. Here’s to a cure for cancer.



"

JD wrote on Mar 10, 2008 3:09 AM:

" To 2 nut cases and to PBL---what on earth are you talking about people? You are under the wrong news article. This one is about CANCER. I don't recall seeing anything printed here about Hillary or Barack. Stick with the story and chill. "

fox wrote on Mar 10, 2008 3:05 AM:

" Funding to find a cure is a good idea but funding to find a cause seems appropriate as well. How sad that the insurance company is more of a burden than the disease. I am not surprised though. They are out to make a profit off of sick and injured individuals. The fine print reveals itself more so in these unfortunate situations. It seems to me that Wyoming has a higher incident rate of CA cases. I wonder how much second hand smoke that this non-smoker was exposed to in her lifetime and/or if she smoked anything besides cigarettes (non smoker, I know). Her occupation would also be nice to know unless I missed that in this article. It's good news to hear that the bone marrow transplant saved her. How ironic eh? (Marrow saved Morrow's life or at least extended it a bit).I wonder how much research was invested in searching for a cause that could be possibly related to a viral invasion of some type. I’m sure that they must take biopsies of lung tissue in order to determine the type of CA but how many other tests are performed on these samples? Interesting. "

Nurse Hatchet wrote on Mar 9, 2008 8:57 PM:

" I wished we didn't have to hear the big (C) word but the mental coverage is painful to cover costs but you ppl would have it covered, just keep in mind that, it's not open heart surgery and it wouldn't be heart failure...just take med's correctly and seek doc when needed!!! "

2 nut cases wrote on Mar 9, 2008 12:45 PM:

" Phooie on Barack Obama the socialistic nutcase. A vote for this guy is a death ticket for America. Same goes for Hillary. "

PBL wrote on Mar 9, 2008 7:35 AM:

" It's good to see the Wyoming delegates rejected the negative tactics of the Clinton machine. This style of negative politics does not belong in Wyoming. Congratulations to Barack Obama! "

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